GR. from Maharashtra state government. Govt. seeks to remove stigma attached to vitiligo
State government's new order stated that henceforth the
use of Marathi word, 'shwetakushtha', will be banned in all types of communications.
Instead, it will be called 'shweta twacha' (white spots/skin).
- An article Published in Chaturang (Loksatta): Saturday, February 23, 2013.
By Dr. Maya Tulpule
"सत्तराव्या वर्षी कोड आलं ते तेवढं बरं करून द्या, मला मरताना कोड नको आहे", असं म्हणणारे आजोबा भेटतात, तेव्हा अगतिक झाल्यासारखं वाटतं.
कोडाला अजूनही १०० टक्के उपचार उपलब्ध नाहीत.
त्यासाठी खूप काम करणे गरजेचे आहे.
सांगताहेत गेली बारा वर्षे कोडा विषय़ीची नकारात्मक मानसिकता बदलण्यासाठी श्वेता हा स्वमदत गट स्थापन करणाऱ्या तसेच नितळ चित्रपटाची निर्मिती करणाऱ्या डॉ.
Shweta Association is a pioneering Vitiligo Support Group in India. Considering a Vitiligo person and his emotional,
psychological, social and day-to-day needs, "Shweta" takes a holistic approach to all the problems.
It provides a common platform for such people to unite them, discuss their problems, to exchange views,
to learn scientific facts about the disorder and above all to improve the self image of the person.
Shweta Association works to achieve the aims stated above. A lot of people such as social workers,
skin specialists (dermatologists), psychiatrists, pathologists, ophthalmologists, genetic counselors,
beauticians etc. are actively involved with "Shweta". People suffering from this problem should
come forward and join us. We hereby appeal to all the people who want to work for this cause to come forward and help us.
Vitiligo or Leucoderma is not a disease per se. It is an auto-immune disorder. Melanocytes or cells
producing melanin pigment sometimes gradually decrease in number leading to white patches on the skin.
This depigmentation of the skin does not affect other organs of the body. Cosmetic disfigurement and fear
of hereditary transmission has attached an undue social stigma to this disorder.
Vitiligo is found
all over the world and is seen in about 1% to 3% of the population. In approximately 15 to 20% people it
can be transmitted to future generations. In 80% of the people it is secondary to some sort of allergy,
trauma, etc. Vitiligo is not a contagious disease and it does not affect the physical and mental ability of
a person in any manner. Many people with Vitiligo have gained prominence in various walks of life.
Diseases like Diabetes, High blood pressure, Cardiac disorders, Cancer etc. are hereditary,
cause disability to certain extent and involve many vital organs in the body. But there is no social stigma
attached to these. Social stigma attached to diseases like Leprosy, Tuberculosis, etc. has been eradicated
to a great extent, as a result of social awareness campaigns, health education programs, and effective treatment.
Our aim is to remove the social stigma attached to Vitiligo by creating awareness among people.
Movie “NITAL” (Language - Marathi. Year - 2006)
• Directors: Sumitra Bhave and Sunil Sukhthankar
• Produced By: Dr. Maya Tulpule DVD available for purchase at the Shweta office
मुलाखत - 'कोड - समज, गैरसमज'
सौजन्य - दूरदर्शन. सखी - सह्याद्री वाहिनी.
Media coverage of 1st Ever Run for Vitiligo
Click on the thumbnails below to read article
कोड असणाऱ्या व्यक्तींच्या स्वमदत गटातर्फे आयोजित सर्वांसाठी खुली स्पर्धा.
विषय : 'त्वचाविकार आणि आत्मभान' (मराठी)
Skin blemishes and self esteem (English)
शब्द मर्यादा : १२००
निबंध पाठवण्याची अंतिम तारीख : १५ मार्च २०१६
संपर्क : श्वेता असोसिएशन, द्वारा - सहवास हॉस्पिटल, २६, सहवास सोसायटी, कर्वेनगर, पुणे - ४११०५२. फोन ०२० २५४५८७६०
We provide individual & group counseling and also conduct workshops by counselors and psychologists. read more...
Functioning since September 2002 with the help of a few marriage bureaus from Pune,
this is one of our most sought-after activities. read more...
The concept of covering up the patches with simple Foundation Cream after matching the
color tone is novel.
It boosts up one's confidence while presenting oneself in day-to-day activities. read more...
Shweta Association offers help to all these people for better placement.
Please send your resume to us, if you are unemployed or not happy with current job. read more...